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Hutchinson-Gilford Progeria syndrome is an extremely rare genetic condition which causes physical changes that resemble greatly accelerated aging in sufferers. The disease affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) newborns. Currently, there are approximately 40-45 known cases in the world. There is no known cure. Most people with progeria die around 13 years of age.
Ashley Hegi is a 16 year old girl who lives in Canada and has Progeria. There have been many TV specials about her. Her mother has a website:
http://www.progeriaproject.com/Kids/ashley/Photos/lime.htm
Ashley is an inspiring and courageous little girl!!!
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